《中国康复理论与实践》 ›› 2005, Vol. 11 ›› Issue (02): 110-112.

• 专题 • 上一篇    下一篇

唐山地震26年后幸存脊髓损伤患者的社会调查

李建军 ; 周红俊 ; 刘根林 ; 刘松怀 ; 赵超男 ; 宓忠祥 ; 崔志茹 ; 郑樱 ; 郝春霞 ; 熊宗胜 ; 马洪路 ; 周天健   

  1. 1.首都医科大学康复医学院 北京市 100068;2.中国康复研究中心 北京市 100068
  • 收稿日期:2004-04-19 出版日期:2005-02-25 发布日期:2005-02-25

A social survey of patients with spinal cord injury 26 years after Tang Shan earthquake

LI Jian-jun, ZHOUHong-jun, LIUGen-lin, et al   

  1. Faculty of Rehabilitation of Capital University of Medical Sciences, Beijing 100068, China
  • Received:2004-04-19 Published:2005-02-25 Online:2005-02-25

摘要: 目的 了解唐山地震26年后幸存脊髓损伤(SCI)患者的生活状况。方法 从14个疗养院中随机选取4个疗养院,并随机抽取1个城市社区(城市组)和1个农村乡镇(农村组),调查其中的唐山地震 SCI患者。向被调查者发放问卷,内容包括居住环境、收入、精神状态等41项;将调查结果与1988年的调查相比较。结果 对比两次调查结果,唐山地震 SCI患者的生活状况已有了显著改善,主要表现在居住环境(100%的患者现居住在经过特殊改造的房屋)和医疗服务(轮椅使用率从38.1%上升到100%),大多数患者心理处于适应期,收入增加(21.1%的患者从事各种职业),业余生活丰富,SCI常见并发症减少,虽然尿毒症仍为第一位的死因,但比例已明显下降,而死于心脑血管疾病的在比例较高(占死因的第二位)。结论 唐山地震 SCI患者生活状况的改善反映了中国社会的进步,但仍有一些问题需要进一步解决,如就业率低、生活保障和医疗康复条件需进一步改善、性康复和生育问题等。

关键词: 脊髓损伤, 社会调查, 康复

Abstract: ObjectiveTo investigate the living condition of patients with spinal cord injury (SCI) after Tangshan earthquake.MethodsA questionnaire was designed for the investigation with 41 items including resident environment, income, mood, etc. The faculty of surveillance was composed of trained professionals. 1261 SCI patients living in Tangshan at present, 420 of which live in the sanatoriums and others live in the common families. The patients of four sanatoriums were chosen randomly from fourteen sanatoriums to be investigated in detail, and patients in the common families in two communities, one from city, another from countryside, were also chosen. This investigation was performed in 2003.The results are compared with that of 1988' survey.ResultsGreat improvements in the living condition of SCI patients in Tangshan were shown by the comparison of these two surveys, they were mainly in: the progress in the housing environments (100% SCI patients now live in the specially designed reconstructed houses); better medical services provided (the ratio of wheelchair available from 38.1% to 100%); the majority of the patients in acceptance stage of their disability; the increase of income (21.1% takes up various occupation) with a vigorous spare time; decrease in the common complications with SCI patients; although uremia was still the first death cause of the SCI patients, the percentage was decreased apparently; cardiovascular accident had a higher percentage in the death cause(the second leading cause), implies that the death cause of the SCI survivors had approached the normal person.ConclusionThe improvements reflect the social progress in China. However, still there are some problems to be remained for further solution: the ratio of employment is low; the insurance of living and medical rehabilitation needs further improvement.

Key words: spinal cord injury (SCI), social survey, rehabilitation