《中国康复理论与实践》 ›› 2009, Vol. 15 ›› Issue (11): 1025-1028.

• 综述 • 上一篇    下一篇

脑瘫登记管理

史惟;杨红;王素娟;王艺   

  1. 复旦大学附属儿科医院康复中心,上海市 200032
  • 收稿日期:2009-05-19 出版日期:2009-11-01 发布日期:2009-11-01

Registration Management for Cerebral Palsy (review)

SHI Wei,YANG Hong,WANG Su-juan,et al   

  1. Child Rehabilitation Department, Children's hospital of Fudan University, Shanghai 200032, China
  • Received:2009-05-19 Published:2009-11-01 Online:2009-11-01

摘要: 在欧洲等地开展广泛的脑瘫登记管理通过统一的数据管理,系统收集与脑瘫相关的一系列信息,对脑瘫进行系统康复管理。我国应该尽快地建立适合国情的脑瘫登记管理制度,为脑瘫科学研究提供更多的研究样本,通过多方参与进一步提升整个社会对脑瘫疾病的认知程度以及对脑瘫儿童的关注度,也有利于决策者更好地制定援助脑瘫儿童及其家庭的各项政策。需要解决的主要问题是统一脑瘫的诊断标准、分类分型和分级方法。

关键词: 脑性瘫痪, 登记管理, 诊断, 分类, 综述

Abstract: In Europe Registration Management for Cerebral Palsy (CP) has been widely carried out, which collects various related information and systematically manages the rehabilitation of children with CP by uniform database. Chinese Registration Management for Cerebral Palsy fitted with Chinese situations should be established as soon as possible which will benefit the following: to provide more samples for scientific research on cerebral palsy; to promote social awareness and attention for CP children by multiple side participation; to help policymaker to plan more suitable policies for CP children and their families. The main problems needed to resolve are unification of the diagnosis, clinical types and function classification of cerebral palsy.

Key words: cerebral palsy, registration management, diagnosis, classification, review